The consortium shall deal with the possibility and feasibility of exploring indigenous therapies in the already-approved trials and any negotiation or arrangement to be entered into with the companies who already have approved therapies for rare diseases in India. Delhi High Court on Monday directed the National Consortium for Research, Development and Therapeutics for rare diseases to hold a meeting and give recommendations regarding funding of clinical trials for DMD, a rare disease. The high court said the consortium, which shall hold the meeting by March 26, is free to call for participation any other agency or person whom it deems appropriate to be required for making the recommendations, which shall be comprehensive in nature. The consortium shall consider the age of children whose lives may be completely curtailed if treatment is not commenced and the expenses, which may be incurred for providing the medicines, it said. The consortium shall deal with the possibility and feasibility of exploring indigenous therapies in the already-approved trials and any negotiation or arrangement to be entered into with the companies who already have approved therapies for rare diseases in India.
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